by Betsy Brint
The Wilmer Eye Institute and The Foundation for Retinal Research sponsored the first conference ever for people with Leberís Congenital Amaurosis (LCA) and their families. The conference was held November 4 - 6 at the Maryland School for the Blind and Johns Hopkins Hospital.
More than 200 people attended the Conference from countries all over the world including Ireland, Belgium, Canada, Turks and Caicos Islands, Panama, Saudi Arabia, Venezuela, Italy, and the U.S. Every family had one thing in commonóa family member with LCA.
People attending the conference had the opportunity to be seen by several specialists at Johns Hopkins Hospital. Heading the team at Hopkins was Irene H. Maumenee, M.D. Dr. Maumenee has a large number of patients with LCA who come to be seen by her from around the globe. She also heads a team of researchers studying LCA.
The next LCA conference is planned for November, 2001. For more information, contact:†
The Foundation for Retinal Research,
1985 Dale Avenue
Highland Park, IL 60035
Fax: (847) 433-1908