THE BRAILLE MONITOR
Barbara Pierce, Editor
Published in inkprint, in Braille, and on cassette by
THE NATIONAL FEDERATION OF THE BLIND
MARC MAURER, PRESIDENT
National Office
1800 Johnson Street
Baltimore, Maryland 21230-4998
NFBnet.org: http://www.nfbnet.org
Web site address: http://www.nfb.org
NFB-NEWSLINE® number: 1-888-882-1629
Letters to the president, address changes, subscription requests, and orders for NFB literature should be sent to the National Office. Articles for the Monitor and letters to the editor may also be sent to the National Office or may be emailed to bpierce@nfb.org.
National Federation of the Blind
1800 Johnson Street
Baltimore, Maryland 21230
THE NATIONAL FEDERATION OF THE BLIND IS NOT AN ORGANIZATION
SPEAKING FOR THE BLIND--IT IS THE BLIND SPEAKING FOR THEMSELVES
ISSN 0006-8829
Vol. 46, No. 10 November, 2003
Contents
Victory in the Moynihan Case
by James Moynihan
A Town Built on Empowerment
by Laura Sullivan
Graphical Verification:
Another Accessibility Challenge
by Curtis Chong
First Impressions: My Conversion into Blindness
by Joy Thomas
My Second National Convention and I Am Still Growing
by Katrilla H. Martin
The 2004 National Federation of the Blind
Scholarship Program
A German Voyager's Bold Vision for Tibet's Blind
by Jim Yardley
A Rehabilitationist's Notebook:
Oliver Sacks on Blindness
by Anthony R. Candela
From India with Hope
by Deborah Kent Stein
The Learning Curve
by Marnie Utz
Blind Teens Gain Work Experience during
Center's Summer Program
by Shawna Hickman
A New Beginning
by Al Spooner
Recipes
Monitor Miniatures
Copyright © 2003 National Federation of the Blind
On September 12, 2003, between five and six hundred cyclists rallied at Battery Park near the site of the World Trade Center and then walked to the river to be ferried across to Sandy Hook, New Jersey, where they mounted bicycles, tandems, and hand-operated bikes for a two-day ride to the Capitol in Washington, D.C. They were taking part in the World T.E.A.M. Sports Face of America 2003.
Erik Weihenmayer, the blind climber who summited Mt. Everest in 2001 sponsored by the National Federation of the Blind, sits on the World T.E.A.M. Sports board. Because of this connection the NFB fielded four tandem teams for this year's event. They raised almost $8,000, to be divided equally between the NFB and World T.E.A.M Sports.
[LEAD PHOTO/CAPTION: NFB staff members taking part in the Face of America ride stand with President Maurer in front of the National Center. Left to right are Maurice Peret, Holly Mooney, Marc Maurer, John Brennan, and Karen Friedman. The tandem bicycle ridden by the Mooney-Peret team is visible behind Mrs. Mooney.]
[LEAD PHOTO/CAPTION: The NFB team poses for a photograph in New York. Left to right standing are Karen Friedman, holding the NFB flag; Betsy Zaborowski, NFB director of special programs; Michael Gosse; Kristen Cox, director of the Governor's Office for Individuals with Disabilities; Marty Buhrow; and Brian Buhrow. Kneeling (left to right) are Holly Mooney, Maurice Peret, and John Brennan, recently appointed chief of staff in the Governor's Office for Individuals with Disabilities.]
[LEAD PHOTO/CAPTION: Face of America riders gather at the West Front of the Capitol building for closing ceremonies.]
[PHOTO/CAPTION: Jim Moynihan]
Victory in the Moynihan Case
by James Moynihan
From the Editor: Jim Moynihan is a longtime Federationist and a leader of the NFB of Missouri. For the past four years he has been engaged in a struggle for justice in his job with the Office for Civil Rights in the U.S. Department of Education, of all unlikely places. One would have thought that those working to enforce civil rights would be the first to practice fairness in employment, but apparently this was not the case. Here is the Moynihan story as told by Jim himself:
What happens when a blind federal employee applies for promotion only to encounter discrimination at every turn? This is the account of my struggle to obtain a GS13 position with the Office for Civil Rights, (OCR), U. S. Department of Education. Our regional office is located in Kansas City, Missouri.
OCR's mission is to enforce civil rights statutes such as Section 504 of the Rehabilitation Act of 1973 and Title II of the Americans with Disabilities Act. As a federal agency OCR is obligated to hire, promote, and provide reasonable accommodations for employees with disabilities.
Angela Marie Bennett became office director on March 17, 1997. Her management style has been characterized by secretiveness and stealth--the less employees know, the better. She announced that anything from zero to four GS13 positions would become available. These promotions rarely come along and are highly prized. They mean more money in the paycheck, and retirement income is based on the salary during the last three years before retirement.
Nobody knew what the criteria for these promotions would be. Would seniority matter? Would work performance count? Management said that nine candidates would be interviewed for the GS13 positions. The interviews would be conducted on January 27 and 28, 1999.
Steve Stratton, the program manager, and the four team leaders--John Nigro, Michael Hamilton, Safiyyah Muhammad, and Jody van Wey--were to conduct the interviews. John Nigro was and still is my team leader and is a paraplegic who uses a wheelchair. Some people have said, and I am sure he would agree with their assessment, that he is the office's guru on disability.
At this time Patricia Boyd (Pat) was the president of American Federation of Government Employees (AFGE) union local 3892. On January 25, 1999, Pat was working flexiplace at home, which allows federal workers to complete approved projects at home. Pat received a telephone call from Kay Schlagle, one of the nine candidates. Kay began asking Pat how she would answer certain questions on Title IX, Title VI, and other civil rights statutes. Pat asked Kay why she was asking her such questions.
Kay told Pat that the interview was going to be based strictly on OCR policies, procedures, and memoranda. Pat had previously been selected for a GS13 position and assured Kay that the interview would be nothing like that. When Kay insisted these were to be the kind of questions on the interview, Pat asked her why she thought this, and she responded that John Nigro had told her so. Though Pat was skeptical of Kay's description of the interview process, she told Kay she had conducted training for equal opportunity assistants and that Kay could find a wealth of materials in Pat's credenza.
That was all Kay needed. She told an attorney on our team that she could not complete an assigned project because she needed three days to study for the oral interview. (Pat did not tell me about this conversation with Kay until after the oral interviews had taken place because she has integrity and because in that way I could truthfully say that I had had no knowledge of the questions to be asked.)
Pat then emailed Angela Bennett that a potential problem had emerged with the oral interview process and requested a meeting with Angela, but Angela ignored her email. The promotion interviews took place on January 27 and 28, 1999, with my interview taking place on the 28th. I was the seventh candidate interviewed.
The interview comprised eighteen questions regarding OCR regulations, policies, and procedures. For example, one question asked about the three-part test used in Title IX athletics cases. This concerns allegations of sex discrimination, usually against female athletes. I happened to know that answer because I had just read something on Title IX athletics. Otherwise I might have known only two out of three parts. Getting this question right, however, had no bearing on the ability of an investigator to process Title IX athletics cases.
I rode home with Pat Boyd after the interview, and she asked me how it had gone. Only after I described the interview, did she reveal that John Nigro had divulged the nature of the questions to Kay Schlagle prior to the interview. I found it incredible that my own team leader would give away the questions on an interview to another member of my team. John Nigro has since steadfastly denied under oath giving information regarding the interview to Kay Schlagle, and Kay has denied under oath receiving information from Mr. Nigro.
Angela Bennett soon received complaints from candidates that the oral-interview process had been tainted. She appointed Steven Stratton, the program manager, to investigate this matter. Steve interviewed only three people and concluded that no clear evidence existed that the oral-interview process had been tainted.
On February 24, 1999, Angela sent an email to the nine candidates saying that we would have a ten-minute interview with her on the 24th and she gave us a schedule of times when the interviews would be conducted. She added that it was not necessary to dress up for the interview. Of course we speculated about what Angela could ask that would take only ten minutes, but we could only wait for the appointed time.
Taking nothing for granted, I selected my best suit and tie. On the morning of February 24 I was sitting in the OCR conference room, watching films on black history. Angela's secretary called me out of the room and said that she had noticed that I had not opened the latest email from Angela. She then told me that a written interview exam would take place at 2:00 p.m. The other eight candidates would take their written exams across the street in the fancy Regional Training Facility.
She said they would be given the choice of handwriting their exams or using a computer. She stressed that the interviews would be anonymous. She would type the exams of the candidates who chose to handwrite their exams so that they would be anonymous. The candidates were not to put their names on their exams. Each one would be assigned a number to ensure anonymity.
During the EEO investigation I asked Angela why the other eight candidates were given the option of either handwriting their exams or typing them on the computer. Everyone in the office had received computer training. Angela explained that some of her staff did not feel comfortable using computers and were allowed to handwrite their exams. I, on the other hand, was not given any alternatives, such as writing my exam in Braille to be transcribed into print. I was simply told to use the computer in my office.
What happened to the ten-minute interview with Angela? She later explained in her EEO testimony that she had hated to use such a ruse but that this was the only way to ensure that the employees would show up for the written exam.
I was shocked and bewildered. Since we had undergone an oral interview, why were we being subjected to a written one? But there was nothing for it but to take the written exam. I was told that Steve Stratton would proctor my exam in my office. Steve explained that I had from 2:00 p.m. to 4:00 p.m. to complete the exam.
It contained six tough questions about OCR regulations, policies, and procedures. Steve read the questions to me, repeated sections of the multiple-part questions where necessary, and remained with me throughout the exam. He assured me that the examinations would be anonymous and that I was not to sign my document.
The exams would be assigned a number. My exam was number 7, since I was the seventh candidate interviewed orally. I felt pressed for time and in my anxiety did not think to ask for extra time as a reasonable accommodation. Slightly before 4:00 p.m. I finished the exam.
Remember that everything I wrote was on the screen, which Steve could observe. I printed out my exam answers. Steve took the pages out of the printer and placed them in an envelope, marking number 7 on it.
Angela was proctoring the exam for the other eight candidates at the training facility. She called to see if I had completed the exam, and Steve said that I was done. According to Angela, the other candidates were panicking, running out of time, but Angela said she told them to stop since I had finished. After all, fair is fair.
When the numbering system for ensuring anonymity was explained to the candidates, one of them, Diana Goold, pointed out to Angela in an email that her system for ensuring anonymity was fatally flawed. For example, if she was the third candidate interviewed on the oral exam, her identity would be disclosed by checking her number on the written exam against the list of oral interview candidates.
Angela thanked Diana for pointing out this problem. In hindsight Diana should have waited until after Angela announced her selectees to disclose this problem.
Angela said later that, while driving north on I29 to work, she noticed the numbers on passing automobiles. She called her secretary with the solution to the anonymity problem. She would assign a license number to each candidate.
Nobody knew how many candidates for the GS13 positions would be selected and what the criteria would be. The suspense ended late Friday, March 13, 1999. With one exception Angela announced the selected candidates by email. They were Jim Weston, Kay Schlagle, Vicki Taylor, Natalie Hauser, and Jeannetta Bogan. Angela told Diana Goold in person that she had not been selected; the others who lost out were Lawrence Lee, Adrienne Payne, and I.
I was shocked, then angry. I was far more competent than several of the selectees, and I resented receiving the information by email rather than in person. We soon noticed that none of the union officials had been chosen. Lawrence Lee was the union vice president, Diana Goold was chief steward, and I was the steward.
I filed an EEO complaint with the Department on July 6, 1999. I contacted President Maurer and explained the situation to him. He agreed that I had been discriminated against and said the Federation would provide financial support. Gary Wunder, Missouri affiliate president and national board member, agreed to be my representative. I owe him a debt of gratitude that I will never be able to repay.
The representative could attend the EEO hearing only as an observer. He could not make statements or participate in the hearing. When warranted, he could call for a break to take me aside to confer. I could only ask questions (what they call interrogatories) of witnesses and could not make statements. I was not used to this format nor accustomed to running my own investigations. On several occasions Gary had to call me out of the room, urging me to follow the format laid out by the EEO investigator.
The way Angela had chosen the five candidates soon became apparent. In her EEO testimony Angela claimed that the selection was based solely on the combined scores of the oral and written interviews. Seniority and work performance meant absolutely nothing. Angela said that she wanted to test the knowledge base of the candidates in making her selections. She probably believed she had created a complaint-proof system of selecting the candidates.
But further analysis revealed that the selections had actually been based on the oral interviews. The oral-interview process had been called into question, with good reason. So the written interview was added so that Angela could say that nobody had had prior knowledge of that exam.
After filing my EEO complaint, I was given the investigative file containing the ratings by the team leaders on the oral interview panel, supposedly an objective exam on OCR policies and procedures. The ratings indicated that the team leaders could not be trusted; it was time to settle old scores. For example, Mr. Nigro, who had given information about the interview questions to Kay Schlagle, ranked her number 1. The other panelists ranked Natalie Hauser number 1.
Safiyyah Muhammad ranked Diana Goold number seven, but the other panelists all ranked her much higher. Safiyyah was black and clearly saw Diana as a white female from a privileged background. Also Diana was on Safiyyah's team and never hesitated to voice her disagreements with him.
I was ranked number seven by Jody van Wey, but higher by the other panelists. John Nigro ranked me five, and Steve Stratton ranked me third. I had worked for years with Jody, and she was not happy having a blind employee. The problem revolved around her relationship with an employee on her team named Joe Monahan. Jody and Joe were married, but not to each other. They both lived in Independence, Missouri, and drove to and from work together. They always went to lunch with each other and did on-site investigations, taking adjoining hotel rooms with a connecting door. They were frequently observed holding hands. My former branch chief chided them for playing footsy in staff meetings. At a party at the regional director's home my wife, who has some sight, observed Jody sitting on Joe's lap.
Years ago there was office talk about not selecting Jody as branch chief. When she called me into her office to ask what was going on, I told her that people were concerned about her relationship with Joe. Jody gave a forced laugh, saying she and Joe were just friends. I did not contradict her.
Splitting the Baby
The EEO investigator wrote a good report on the complaint, but it contained no conclusions. I made a critical mistake by opting for a decision by the Department's general counsel rather than a hearing by the Equal Employment Opportunity Commission (EEOC).
The decision stated that the Department was in violation of Section 504 of the Rehabilitation Act and Title II of the ADA by failing to provide reasonable accommodations for the written portion of the test. A notice of this decision was to be posted on OCR's bulletin board for sixty days and should not be altered or defaced. The OCR managers were required to attend eight hours of disability training.
The problem with the decision was that, even though the Department was in violation of the civil rights statutes it enforces, the Department attorneys ruled that this was not enough to constitute discrimination and that there was no individual remedy. In other words, I would not receive a GS13 position.
The decision also stated that I could appeal this ruling to the EEOC. My elation at finding that the general counsel had found the Department in violation was overshadowed by the knowledge that I would not receive the promotion to which I felt I was entitled. Where was I to go?
For over twenty years I have belonged to AFGE local 3892, and I knew that they maintained a legal services office. I shipped the two thick notebooks constituting my case file to the union's legal services department in Washington, D.C. I had several conversations with a union attorney.
A few weeks later I received a letter from her saying that the union could not help me with my case. She explained that my case affected only one person and was not precedent-setting. She said the union had limited resources and had to make sure its funds were spent effectively.
EEOC appeal
I began my own search for an attorney and eventually hired Dale Ingram, who developed a ten-page legal brief which EEOC received on May 18, 2001. Ingram explained that the oral interview process had been tainted, as revealed in contradictory testimony from the witnesses who participated in the EEO hearing. He argued that the main problem was the failure of the written interview to ensure my anonymity. He requested that the case be remanded back to the Department for additional investigation.
The most difficult part of such a process is the waiting. EEOC deals with cases alleging discrimination in the area of employment. It had a backlog of 100,000 complaints and a staff of fifty lawyers. Gary Wunder and the Missouri affiliate were just about my only encouragement. Gary put my case on the agenda at board meetings, and meeting after meeting I regularly informed the patient board members and audience that I had no news.
I also sent letters to Senator Carnahan and Senator Bond about my case. Melissa Ortega, staff member in Senator Bond's office, was particularly helpful. She succeeded in advancing my case upward in the mountainous pile of cases to be assigned. On June 26, 2002, she gave me the encouraging news that my case had been assigned to an attorney.
I called, and the attorney of the week told me that they would not give me the name of the attorney to whom my case had been assigned. There were to be no ex parte discussions (talking) between the complainant and the assigned attorney.
I then asked how my case would be decided if I could not talk to the attorney to tell him or her at length about the discrimination on the basis of blindness to which I had been subjected. She explained that the case would be decided on the record, that is, by the evidence contained in the case file.
How long would it take for the assigned attorney to render a decision? There was no telling. It would depend on the schedule of the assigned attorney and the complexity of the case. Moreover, the attorney's decision would have to be reviewed by his or her supervisor before the final decision was signed by the EEOC director.
On August 27, 2002, my lawyer reported that he had received the decision from EEOC and that I had won my case. The EEOC decision provided for the GS13 with back pay and interest and attorneys' fees. The Department had thirty days to appeal EEOC's decision.
I showed this decision to an attorney knowledgeable in civil rights. He could not believe the totality of the decision. I had won on every point.
The EEOC decision said that Bill Dittmeier had used the wrong legal theory, disparate impact, in writing the Department's EEO decision. He should have used the legal theory known as different treatment. Disparate impact refers to groups of people such as minorities, women, or people with disabilities. For example, an investigation might establish that a smaller percentage of minorities than expected had been admitted to law school or, as is often the case, that a higher percentage of minority high school students had been suspended for disciplinary reasons. These bad numbers as we call them are not enough to prove that discrimination has occurred, but they are a good indicator that further investigation is warranted.
On the other hand, different treatment refers to the treatment given to a particular individual. Of the nine applicants I was the only person with a disability who applied for the GS13 position and was not, therefore, part of a group. The question, as Bill Dittmeier should have known, was whether I had been treated differently when rejected for a GS13 position.
The EEOC decision ordered the Department to provide me the GS13 position with back pay and interest. It ordered the Department to post a notice on the Department's bulletin board and leave it there for sixty days and not to alter or deface the notice. The OCR managers were also to take disability training.
EEOC's decision stated that OCR, and in particular Angela Bennett and Steve Stratton, had failed to provide reasonable accommodation regarding the administration of the written exam. OCR had taken elaborate steps to ensure anonymity and assured all nine candidates that their examination answers would be anonymous to prevent bias. But the same person, Steven Stratton, who proctored my exam, also scored it. Such an arrangement clearly did not protect my anonymity since Steve was present throughout the exam, took my exam out of the printer, and sealed it in the envelope.
Response of the Department of Education
Yogi Berra was right again when he said, "It ain't over until it's over." The Department of Education was not giving up. On October 3, 2002, the Department appealed EEOC's decision in its usual confusing way. I telephoned EEOC around October 15 and was told that EEOC had received a cover letter notifying them that the Department wished to appeal its decision and that the appeal would be coming under separate cover. I explained that I had not received a copy of the appeal and contacted the Department's EEO office. The Department's response had been sent to me at 445 East 7th Street by certified letter, which never reached me, because I live on 74th Street.
My attorney hadn't received a copy of the Department's response either. When I contacted EEOC, they told me that my attorney was not listed as my representative. This was puzzling since EEOC had sent him a copy of its favorable August 27 decision. I then telephoned the Department's EEO office to obtain a copy of its response to the EEOC decision. An EEO specialist told me she had better things to do than send me a copy of the response. She explained that this was her last day before she transferred to HUD. She said she was delegating this matter to another specialist.
On October 18 I received a call from an EEO specialist who said that she had faxed a copy to the government union office at work and another copy to my attorney.
The response said that the oral interview counted for 450 points and the written interview constituted 25 points. Thus the written interview counted for only 5 percent of the total points on which the candidates were graded.
They agreed to rectify the problem by giving me a perfect score of 25 points on the exam. With these points added, I would still not have sufficient points to be selected for the GS13 position.
My attorney contacted EEOC and was told that they had not received a copy of the Department's response, so he faxed a copy of the Department's response to them. Now EEOC had the Department of Education's Request for Reconsideration in its hands. I contacted EEOC and was told that the Request for Reconsideration had not been assigned to an attorney because EEOC had 9,000 cases and a staff of fifty attorneys to process them.
I contacted Senator Bond's office requesting the senator's assistance in getting my case assigned to an attorney. I eventually found out that the Request for Reconsideration had been assigned to an attorney. The assigned attorney makes a decision, which is then passed on to a panel of attorneys to review.
If the panel concurs, the decision is then given to the EEOC director for his signoff. If the final EEOC decision is in the complainant's favor, a compliance officer is then assigned to monitor mandatory compliance of the employer with EEOC's order.
We were back in the waiting game. On June 25, 2003, I called EEOC's Office of Federal Operations. I was told that EEOC had reached a decision. Was the decision favorable or unfavorable? I asked. She could not tell me the outcome, but she said the decision was dated June 19, 2003. On June 26 I heard officially from my attorney that I had won the case and eventually received notice of this fact by mail. I would receive the GS13 promotion with back pay, interest, and attorneys' fees. EEOC had sixty days from the June 19 decision date to offer me the GS13.
On July 22, 2003, the Department of Education's EEO office sent a certified letter offering me the GS13 position. The letter did not reach my house until July 28; I responded on the same day, sending an overnight letter accepting the position. The Department of Education's EEO office will compute the amount of back pay and interest to which I am entitled from March 26, 1999, to July 28, 2003, when I accepted the GS13 promotion. After four years of struggle, we finally achieved victory. I am indebted to members of the Federation and to the organization itself for its patience and steadfast support that culminated in success.
A Town Built on Empowerment
by Laura Sullivan
From the Editor: On Sunday, September 14, 2003, the following article appeared in the Sun Journal, a section of the Baltimore Sun. It is an excellent example of the wrong-headed reporting that results when a zealous institutional public relations office gets hold of an unthinking reporter and feeds her or him a story that fits perfectly with the writer's preexisting prejudices. Such pieces cry out for rebuttal, and this one received two letters to the editor. Here are the original article and both letters sent to the paper:
The heavy Alabama heat hangs low over the square of this old Southern town, rising from the pavement beneath the remnants of fancy opera houses and hotels built on the back of the railroad. It could be any other small town, fumbling forward through a century of economic spurts and hardships. And yet there is something different about this place, almost imperceptible at first, but there once you notice it: one in every ten people who live here is blind or deaf.
Largely a result of being home to one of the nation's oldest schools for the blind and deaf, Talladega has drawn people who are sight‑ or hearing‑impaired. The more people have settled here, the more other people want to.
"People graduate and stay here, or they relocate here so their kids can go to school here," says town historian Tommy Moorehead, director of the Heritage Hall Museum. "There's lots of employment here. People learn the lay of the land. Sometimes it's just easier to stay."
The signs are subtle but everywhere: A man passes the town square, stops at the street corner, and presses a button on a pole. "You can cross Battle Street now," the pole tells him, as the man continues on without missing a beat.
The menus at the local McDonald's are written in Braille. The sidewalks are flawlessly even. And most people-‑even non‑impaired people such as the teen‑age girl behind the pizza counter, the store manager at the local pharmacy, the town's police officers-‑have an unconscious habit of signing while talking, no matter whom they are talking to.
Talladega, an Indian word meaning "border town," for its once central location between two great historic Native American tribes, saw its heyday in the late 1800's and early 1900's when a newly built railroad brought thirty trains a day to the center of town.
Business thrived, and the century‑old plantations and manor houses built during that era still line the quiet neighborhood streets. Even then, though, the nucleus of the town was the Alabama Institute for the Deaf and Blind.
Founded before the Civil War by a doctor whose little brother was deaf, the institute has grown over the past century and a half into one of the most renowned institutions for impaired people in the country. The institute runs three of the town's four schools that cater to people who are deaf, blind, or impaired. They are the Alabama School for the Blind, the Alabama School for the Deaf, and the Helen Keller School of Alabama for children or adults who have multiple disabilities.
The institute also runs the Alabama Industries for the Blind, a $10 million‑a‑year enterprise that employs hundreds of deaf and blind people, who make, among dozens of other items, every tie worn by a man in the four branches of the military.
But the institute also employs plenty of non‑impaired Talladega residents-‑more than 1,100 work at the institute or one of its many branches.
"AIDB is such a part of Talladega, you can't see one without the other," says Lisa Sams, a specialist with the Office of Institutional Advancement at the institute and a lifelong resident. "AIDB has certainly helped the [town's] economy, we employ so many people," Sams says. "But it also keeps so many folks coming in and out of town, and a lot of times people decide to settle here. I think they find the small‑Southern‑town community hospitable."
Despite the institute's reputation, though, little is known about Talladega outside the town limits. The reputation it has is more for being close to a NASCAR speedway than anything else.
"We're the best‑kept secret," Sams says. This community "is a way of life. When you go outside to other cities, you look around and actually notice, nobody's signing here."
Along the historic town square and the newer commercial streets crowded with fast-food restaurants, the Winn-Dixie and the Piggly Wiggly, signing is everywhere, from the checkout counters to the video‑rental shop, where all the movies come with optional subtitles.
Where in most towns access between strip mall parking lots is usually blocked, Talladega's strip malls have pathways linking one shopping area to the next, and any hanging branches are carefully clipped. Some blind people in Talladega are so comfortable on the streets and sidewalks that they keep their canes folded up.
Kim Casey, the manager of the local McDonald's, whose boyfriend is blind, says that because Talladega has always been so conscientious about meeting people's needs-‑both disabled and non‑disabled-‑it makes it easy for everyone to just blend together as people.
"I love it here. It's like ... " she pauses, searching for a word. Her hands think of it first.
"It's too cool. It's one of a kind," she says, signing. "But you'll never hear about it." She doesn't remember when exactly she learned to sign. She just always has.
For many years, town officials say, it seemed people would attend one of the schools, either moving here with their parents or staying as boarders, but then would leave after they graduated. The schools emphasize independence, even adventure, and encourage students to go out and join the world.
Back then the schools' higher education programs focused on trade skills, such as piano tuning for blind students, that could be taken anywhere. They also taught broom making, a craft that takes years to learn.
But in recent years, educated under the philosophy that they could do anything, fewer students wanted to stay around to make brooms. Those who left, having developed careers outside Talladega, didn't find much reason to come back.
The advent of computers brought another change. The institute's industries have grown and changed, bringing in millions of dollars, all of which goes to pay salaries and enhance the schools. The industry arm makes computer supplies and designs programs, jobs that many former students find rewarding and are returning to take part in.
Ray Fulghum graduated from the Alabama School for the Blind in 1956. He left Talladega to join a company that makes pianos. For thirty-seven years he lived all over the state, eventually going into business for himself.
By the early 1990's his best friend, whom he met in the school's dorm in second grade, had moved back to Talladega. Fulghum decided to return too, after landing a job with one of the institute's industries.
"I ventured out, I did my thing," Fulghum says. "But sometimes there's something to be said about being in a place where everyone is just like you."
Fulghum has been around blind people his whole life. Both his parents, who also went to the school here, were blind, and so are his son and a granddaughter, all stricken by congenital cataracts. His great‑nephew, though, born with the same problem, has some sight, thanks to advances in medical technology that have corrected the cataracts.
"It's hard out there to get people to accept people with disabilities," Fulghum says. "You get tired of being stereotyped, of people thinking you're drunk.
"People here, they're used to it," he says. "They don't think anything about blind people walking around town. Everybody intermingles here, and life just goes on."
There you have the article. Here is the letter from Michael Jones, president of the NFB of Alabama and a past employee of the institute:
[PHOTO/CAPTION: Michael Jones]
September 15, 2003
Dear Sun Editor:
Please allow me to comment on the Sunday Sun's article regarding "A Town Built on Empowerment." I was a resident of this community for more than four years, and "empowerment" would be the last word that would come to my mind in describing Talladega. I was shocked by the shameless promotion in which your reporter engaged with apparently very little research. Reading this article, one is led to believe that Talladega is a forward thinking and technically progressive community, at least for people with disabilities. Nothing could be further from the truth.
I found the town to be extremely backward in attitudes about the capabilities of people who are blind or disabled. Consider for example a visit that I made to a doctor's office. The personnel in that office were extremely nervous and uncomfortable in their dealings with me. They continually asked me if anyone was with me. Of course no one was since I am quite capable of traveling independently, but this information seemed to unnerve them. I asked one person if she was used to interacting with blind people, and her response was shocking, especially for a town that is supposed to be so progressive. She said, "We are used to you people being brought over by an instructor, not coming alone."
Mr. Moorehead, director of the Heritage Hall Museum of the City of Talladega, brags that people move to Talladega for employment. One wonders where he arrives at such information when the unemployment rate for Talladega is 9.3 percent, a figure almost twice the state average. One also finds it hard to believe that blind and deaf people find the industries for the blind a great employment bonanza, considering that the average wage for a blind worker is a paltry $5.91 per hour.
Lest one think that blind people are getting their fair share from the Alabama Institute for the Deaf and Blind employment opportunity, one might (and your reporter should) consider further that not one blind person out of the reported 1,100 employees of the institute is employed in an administrative or managerial job. That means that not one blind person is empowered with the authority to make decisions at the institute. Furthermore, blind people are empowered with a full 1 percent of the workforce beyond that of production workers at the institute in Talladega.
Now the institute is not alone in its lack of employment of blind people. The local city and county governments have empowered blind people with jobs in their structure at a rate of 0 percent. It is a pity that your reporter could not have opened her eyes to see beyond the rose-colored veil that was pulled over them. I wonder if she asked any of the merchants if they empowered blind people with a job in their businesses.
Empowerment is not, as Talladega would have one believe, red lights that make noise, smooth sidewalks, or smiling faces. It is dignity one achieves by self-confidence gained by belief in one's abilities and competent training. Blind people who think of themselves as appearing drunk are not examples of empowerment, nor are they examples of the type of quality training that one would expect to come from an institute that trains blind people to live in the world. However, poor training standards at the Talladega-based institute are the norm rather than the exception. Consider for example this past year's high school graduation class from the school for the deaf, where only one student out of twenty-eight earned a regular Alabama high school diploma. Also consider that fewer than 10 percent of the school for the blind's graduates ever finish college.
Talladega brags about being the best-kept secret. There is a reason for the town of 15,000 being unknown: it needs to be.
J. Michael Jones, President
National Federation of the Blind of Alabama
Now here is the letter NFB President Marc Maurer wrote:
[PHOTO/CAPTION: Marc Maurer]
September 17, 2003
Dear Sun Editor:
I am writing in response to the Sunday Sun's article titled, "A Town Built on Empowerment." As president of the National Federation of the Blind, a 50,000-member consumer and advocacy organization of blind people, located in Baltimore since 1978, I am disturbed by the implications of this article and especially the incongruity of the story with its title. Where is the empowerment if one's world is redesigned to meet every possible obstacle--a busy street, an uneven sidewalk, or a hanging branch? Where is the empowerment when the aspects of everyday walking are so altered, no matter the well-intended reasons?
I don't doubt that living in Talladega is pleasant. It is a town that takes special care to protect the blind from inconvenience or perceived harm and has a citizenry with a sensitivity and awareness of the concerns of disabled people (Braille menus are welcomed by the blind in any restaurant). But isn't there an implication in the article that living in any other city, Baltimore for example, or New York, Chicago, or Los Angeles, would be too difficult or scary for a blind person?
We at the National Federation of the Blind believe that it is impractical and unrealistic to expect major changes in the world in order to be able to live in and enjoy it. And we want to be able to live where we need or want to be. Therefore our advocacy is for more and better mobility training (training that will provide the strategies needed to cross busy streets, to check for hanging branches or uneven sidewalks) and, of course, for more information in Braille. As a blind man I have learned the techniques of travel, and most street crossings (other than ones so dangerous we might all wish for some assistance) will not benefit from audible traffic signals. But I can't read print, access the flat-screen ATM, or surf Web sites not compatible with speech output devices. These are the barriers to education and jobs for which I will require modification.
The National Federation of the Blind has for more than sixty years understood what is really needed to improve the lives of the blind, and its members have been dedicated in meeting the challenge to provide what is needed. In January 2004 the NFB will open its Research and Training Institute in south Federal Hill. The Institute will conduct research into the most effective methods for teaching our children Braille, the technologies needed to improve nonvisual access, and the strategies needed to allow our senior blind to continue living independent lives. The Institute will develop, evaluate, and implement programs to increase employment opportunities for the blind. Provide us the training that prepares us for the opportunities in education and employment, and we will go about our lives very much like everyone else.
Cordially,
Marc Maurer, President
National Federation of the Blind
[PHOTO/CAPTION: Curtis Chong]
Graphical Verification:
Another Accessibility Challenge
by Curtis Chong
From the Editor: Curtis Chong is president of the National Federation of the Blind in Computer Science. He now lives and works in Iowa. We increasingly hear frustrated comments from Federationists who have butted their heads against the problem Curtis describes in the following article. It will be important in the months ahead for those who have firsthand experience of the problem to register their objections to the companies keeping them out. Remember that the NFB's technology department is prepared to work with Web site developers to ensure that blind users are not shut out. Here is the article:
A growing number of Web sites have started to implement a new method for protecting their valuable data. It involves the display of a picture of text which the computer user must then copy into an edit box. The theory behind this verification scheme is that a human is smart enough to extract the text from the graphic and enter it into an edit box, while software is not. Web sites do not appreciate having their data extracted by automated systems, which can steal more information in a few seconds than a human can in an entire day. The unfortunate result for the blind is that, since our screen-access programs can't extract information from the picture of text displayed, we are effectively blocked from any service secured in this way.
My first encounter with this approach to protecting a Web site occurred about two years ago when I signed up for PayPal, which is a service for people to send money to each other over the Internet. At that time I was asked to copy a string of text displayed on the screen into the appropriate edit box. I was also informed that, if I couldn't see the text, I should click on an accessibility link. When I chose this accessibility link, I was then presented with a choice to play an audio file which would speak the text I was supposed to copy. Even though the recording of text was extremely poor, I was able to sign up for the PayPal service with the help of my trusty Perkins Brailler.
I confess that at the time, even though I was a bit unhappy with the difficulty of signing up for PayPal, I promptly forgot about the problem and went on to do other things. After all, I was done with the sign-up process that had so inconvenienced me, and I subsequently had no problem getting into PayPal whenever I wanted to use it.
My next encounter with the graphical verification scheme occurred last spring when Tom Wlodkowski, director of accessibility for America Online (AOL), came to me with a problem. He said that AOL was looking for a way to prevent computer programs from acquiring screen names for its Instant Messaging service. The method that the company had decided to use was the very same one that PayPal had implemented years before. He wanted to discuss various ways for the blind to acquire a screen name without being blocked by the graphical verification method. I suggested the approach that PayPal had used, but apparently there was a technical reason why it could not be implemented. Reluctantly both Tom and I finally decided that the only immediate way to solve the problem was to suggest that anyone who could not see the graphic of text to be copied should contact AOL at a toll-free number that would be spoken by the screen reading software but not displayed on the screen. Both of us agreed that, working together, we would need to develop a long-term solution that would be more acceptable to everyone.
Now consider Network Solutions (www.networksolutions.com) and its "WhoIs" service. The WhoIs service allows you to obtain information about Internet domains such as nfb.org, npr.org, microsoft.com, or any other domain registered with Network Solutions. This service is supposed to be available freely to everyone. But today it is not available to the blind. Every time you inquire about a specific domain using the WhoIs service, you are required to enter a string of text that must match text contained in a graphic shown on the screen. This is not a one-time inconvenience. Oh, no--this is a real show stopper for the blind! Perhaps most aggravating of all, unlike AOL, Network Solutions never even considered discussing its implementation with anyone in the blind community.
Now I hear some of you asking, "Who cares about accessing information about domain names?" Good question. The fact is that what Network Solutions is doing is only the beginning of what could turn out to be a very serious problem for us. If security administrators get the notion that this graphical verification scheme actually works (and it does), they are more than likely to implement it for all sign-in procedures, and that means that the blind will not be able to sign in anywhere this approach is used. Forget about putting "alt-text" on all graphics or any other accessibility requirements for the Web. If we can't sign in, it doesn't really matter how accessible a particular site may be. If we can't sign in, we can't access anything.
On August 10, 2003, on behalf of the National Federation of the Blind in Computer Science, I sent a letter to the president and chief executive officer of Network Solutions, one W.G. (Champion) Mitchell. It took more than a month, but early in September I received a phone call from Shelley Rawlings, Network Solutions' director of customer care. Ms. Rawlings and I engaged in some frank telephone and email discussions. The result of our discussion is this.
In the short term Network Solutions will implement what is, to us, an unsatisfactory procedure to allow blind people access to its WhoIs service. A message will appear on its Web site urging customers who are unable to interpret the graphical picture of text to call the Network Solutions toll-free customer service number. In theory a customer service agent will be able to help a blind person to interpret the string of text and thus gain entry to the WhoIs service. I say "in theory" because Ms. Rawlings was not forthcoming with specific information about how the entire process would work. In the longer term I was able to secure from Ms. Rawlings an agreement to have the National Federation of the Blind meet with engineers from Network Solutions to discuss a more acceptable solution to the problem. However, Ms. Rawlings made it quite clear that such a meeting would not happen any time this year.
A cynical person might say that what Network Solutions has done is to buy some time--time which it probably needs to deal with a problem it never anticipated in the first place. Such a person might also maintain that Network Solutions has no real interest in solving the problem and will consequently put us off as long as it can. I would prefer to think that the company is sincerely interested in solving the problem, and to this end I am fully prepared to articulate our position at the earliest possible opportunity.
I will be the first to admit that we, the blind, do not have the kind of technical expertise that is available to companies like Network Solutions. However, we do have a unique knowledge of how blind people use computers. Network Solutions, on the other hand, has the engineering talent to protect its assets and, if it chooses to do so, the wherewithal to implement a solution to the WhoIs access problem that makes everybody happy. Accordingly, I believe it is our responsibility to tell the company how we want a solution to behave, from the blind computer user's point of view, and let the company figure out how to develop it. Assuming that we can get one company to do the right thing, it will be somewhat easier to deal with other companies when, as I fear will ultimately happen, they decide to protect their assets by requiring everyone to copy a string of text from a graphic shown on the screen every time the person wishes to sign in.
Before we can suggest any solutions to the graphical verification problem, it is important for us to understand that graphical verification is not likely to go away anytime soon. The state of technology today is such that this method of protection actually does prevent computer programs from stealing valuable data. Accordingly, we cannot simply demand that a company stop using it. We have to try to meet them halfway.
To begin with, I submit that any solution involving a phone call to a customer service agent is not acceptable under any circumstances. While we might reluctantly agree to this as an interim measure, we should not settle for a permanent solution that requires us to call someone every time we need to have a string of text verified.
Second, I do not object in principle to the procedure implemented by PayPal in which the computer user can play an audio file to hear the string of text that must be entered. What I do object to is the way in which PayPal has implemented this system. The problem with the current implementation is that the quality of the audio is extremely poor, and there is no way to repeat what has been spoken. However, if a company chooses to provide audio information of a better quality and if a repeat function is available, then an audio file which speaks the text string to be copied can serve as an acceptable solution for the blind.
Finally, if a company such as Network Solutions does not want to implement an acceptable audio approach, we could suggest the way the security interface should behave from the blind computer user's point of view and let the engineers figure out how to make it happen. It is conceivable, for example, that we might suggest an entirely new way of verification which proves that the computer user is in fact a human being, while at the same time making it difficult or impossible for automated solutions to hack into the system.
Consider, for example, a string of text that might be displayed in a fully accessible (to the screen-access software) edit box. Instead of copying all of the text, the computer user might be asked to select certain specific characters from the string and enter them into the verification area. The choice of what characters to copy could vary randomly, and the instructions could be written in such a way as to make them impossible (or at least fairly difficult) for intrusion software to comprehend. This is only one of many schemes I could think of, given enough time.
But before we can begin to contemplate the techniques that might be employed to supplant the graphical-verification technology that is growing in popularity, it is critical for the dialogue to begin between companies considering this technology for security and the organized blind. I am happy to report that the dialogue that began last spring between AOL and the NFB continues. We have the beginnings of some positive dialogue with Network Solutions. And I have every hope that as Federationists we will exercise the methods we know well to begin discussions with other companies as we become aware of their use of this technology.
Make no mistake: graphical verification works. It protects Web sites from automated data-grabbing software and, for the time being at least, the blind. While it is mostly an annoyance that some of us have tolerated over the years, if unchecked, it will become the next accessibility barrier for the blind. I am confident that we as active members of the National Federation of the Blind will not let that happen.
[PHOTO/CAPTION: Joy Thomas]
First Impressions: My Conversion into Blindness
by Joy Thomas
From the Editor: Ordinarily I would hold stories like the next two for the December issue, where the convention bulletin appears. My reasoning is usually that articles recounting the powerful impact of a national convention may help persuade a reader or two to decide to attend the annual convention of the NFB during the following summer. With the convention bulletin right there, such folks might just make their reservations immediately and begin planning for the event that could change their lives.
These stories are appearing in November because this issue also includes the announcement of the national scholarship program for 2004. Our program is far and away the most valuable one in the blindness field, and it is important for us all to recognize that fact and take pride in it. But this is only the first truth to acknowledge. Ask most scholarship winners, and they will tell you that the most important gift they have received from the NFB scholarship program is the organization itself and the freedom and independence one can acquire as a result of adopting the NFB philosophy.
Joy Thomas is a graduate student in education at Aurora University in Illinois. She plans to teach Spanish and social studies in middle school and to get a Ph.D. in educational policy. She is well on her way to becoming an outstanding teacher and mentor. Here is the story of her first convention:
In every person's life there comes a turning point where one must choose between what is true and what has lived inside as a lie for his or her entire life. It always helps if one knows the difference between fact and fiction when it comes time to make such a decision. Oftentimes, realizing this difference occurs because of a particular person or relationship. For me that person was my scholarship mentor on one of the final days of the convention, and the relationship is with the NFB.
As a scholarship winner new to the NFB and therefore new to the national convention, I felt overwhelmed when I first arrived in Louisville. I had never been around so many blind people. I felt as if I was at a busy marketplace in a foreign country. But instead of hearing, "Potatoes--four for a dollar!" I heard "East Tower this way! West Tower over here! Get your snack pack here!"
From the moment I stepped off the plane, people asked what I thought of the convention. I thought to myself, "Think of what? The convention hasn't really started." Then it began, and I had no excuse for not having a solid answer when people asked my opinion. Not until later did I realize people were not really asking what I thought about a particular session or meeting. They were wondering what I thought about the NFB's philosophy of blindness, and at the time I really had no answer.
When people began sharing their NFB experiences with me, many of which were reminiscent of a religious conversion, I admit I was a bit skeptical at first. I just waited for my own experiences in order to form my opinions.
When I came to the convention, I naively thought that the convention began with the first general session and of course ended on Friday with the final session. While this may be technically true, the convention really begins when we, the blind, first set foot in the hotel, where we share experiences, encouragement, and a common cause.
After a few days of speakers, seminars, and motivating conversations with Federationists, I certainly felt energized. Yet I still did not get it. I thought I did, and I know I tried to convince others that I did. But my Thursday mentor saw right through me.
Since he was speaking at one of the general sessions that day, we really had no time to talk except during the short intermissions when door prizes were called. Yet he took that time to lean over and say exactly what I needed to hear at exactly the right point in my life. In a gentle yet firm way he laid it all out for me to ponder. Knowing that I have retinitis pigmentosa and currently have high-partial vision, he said that it might be easy to fall into the trap of the hierarchy of sight, but chances are that I will lose more vision in the future and therefore need to think about the way I view blindness. "If you think of yourself as luckier or somehow better than someone who is totally blind, what does that say about what you think of yourself compared to totally sighted people?" That hit me--hard. Tears began to form in my eyes and slowly roll down my cheeks--tears of regret for the times I, or another blind person, tried to speak on behalf of the needs of blind people; tears of shame for the many times I have tried to fake being totally sighted; tears of sadness for the times I looked at my life as a culminating tragedy; tears of bitterness for the times I let people make excuses and decisions for me; and tears of joy for the freedom that I have found. It is respectable to be blind.
This mentor also told me his own story and explained that he did not want me to end up, like he did, at age fifty with a law practice and five kids, but with no blindness skills. He encouraged me to seek out effective blindness training where I am now. And he ended with "You will be okay." And for the first time in my life, I believed it.
To some degree I have felt inferior my entire life. I used to wonder how my life would have been if I had had perfect sight. What accomplishments would I have made? What different relationships would I have? What strange questions to ask myself.
The national convention was not about the scholarship, although I originally thought it was. It was about the nineteen-year-old I met who had a better outlook on blindness after being blind for four months than I have after losing vision over twenty-five years. It was about laughing over blind-moment stories with fellow Federationists until 4:30 a.m. It was about learning to embrace my future instead of fear it.
So, yes, in a way I was converted, but not to some strange religion for blind people. My outlook on blindness was transformed, and I choose fact over fiction: blind people are not defective sighted persons.
[PHOTO/CAPTION: Katrilla Martin]
My Second National Convention and I Am Still Growing
by Katrilla H. Martin
From the Editor: The following article appeared in the summer 2003 issue of the Vigilant, the publication of the National Federation of the Blind of Virginia. Katrilla Martin has been a member of the NFB for only a short time. However, she has incorporated the positive philosophy of the Federation into her own and her family's life. Now read about her experiences at her second convention, where she was an NFB scholarship winner.
In October of 2001 I went to my first NFB chapter meeting. It was in Fredericksburg (the chapter was only a month old when I became a member). Blind people in Fredericksburg decided it was time for them to become visible as an integral part of the small, conservative, family-friendly community. One year later the new chapter's twenty core members demonstrated our potential by hosting the NFB of Virginia's 2002 state convention in our city. What a wonderful way to celebrate our chapter's first year.
I hold the Virginia affiliate in high regard. Our state officers demonstrate effective leadership through their dedicated effort, whether it's traveling several hundred miles to attend a chapter function or meeting a financial need so that everyone who would like to attend a convention can do so. I deeply appreciate their leadership.
Not only are the state officers extraordinary, but the NFBV members are themselves changing what it means to be blind by doing what they can to impart Federation philosophy to loved ones, co-workers, colleagues, state agencies, and other blind Virginians. Because of one of those members, Robert (Mac) McDonald, who established a fellowship program, I had the opportunity to attend the 2002 NFB national convention.
It was my first national convention, and to say the very least, I was overwhelmed! My family and I drove twelve hours from Fredericksburg to Louisville. It was a beautiful drive through the mountain country of West Virginia.
Once we checked in at the Hyatt Regency, we immediately went to the Galt House to register. We visited the exhibit hall, the Sensory Safari, and the hotel's restaurant before heading back to our room at the Hyatt. Nearly every day, we followed the same pattern of activities and meetings. I would rise, dress, eat, and head to the Galt House for sessions. My husband and son would meet me for lunch, and we would all attend the afternoon activities. Most evenings I skipped dinner because I wanted to attend every session possible. From the National Association of Blind Students (NABS) meeting to the NFB-NEWSLINE demonstrations, I was there.
That week I never met an unfriendly soul; I felt the love of my new NFB family. On the drive home I remember feeling newly empowered, as if I bore the letters "NFB" on my chest. At that convention I had felt like a member of a majority, and I didn't feel embarrassed when my cane tapped the foot of a sighted person. That new confidence took me well into the next summer when I attended my second convention.
Oh yeah, I was hooked. Although my second national convention was held in the same city as my first, my experiences at the 2003 convention as a national scholarship winner were very different. Yet the spirit of the Federation remained positive and upbeat. No long hours of giving directions from the passenger seat of our car--this time we flew to Kentucky. It was the first time flying for my son and husband. I was reminded how much we still have to do to educate airline employees. The flight attendant told my son and husband to make sure they mask themselves first before helping the blind invalid. How surprised that crew member was when I informed her that they would most likely need my assistance since it was my umpteenth time flying, and I was certified in CPR, first aid, and public emergency. My school, Mary Washington College, requires certification in these skills.
At this convention I vowed that I would pace myself. I focused on attending division meetings, the state caucus, and convention sessions--all of which related to my new status as a national scholarship winner. I didn't attend as many meetings as I had the previous year, but I did pace myself and seemed to get more out of each session. At the general sessions I was unable to yell from my home state; however, I was able to do so from five other states while I followed my scholarship mentors. As a scholarship winner I was assigned a daily mentor and sat with that mentor's delegation that day. It was great to get to know Federationists from New York, New Jersey, California, Hawaii, Maryland, and Texas, but I missed sitting with my fellow Virginians.
Highlights from this convention included the close bonding of the 2003 national scholarship winners, the banquet address, the interplay and jests between Dr. Maurer and Door Prize Diane, the confidence behind our logo, Whozit, and the realization that I am a living example of the NFB message the symbol embodies.
On Friday, July 4, at 5:00 p.m. the convention ended too abruptly for me. On the flight home I began to make my own resolutions. To begin with, I will become more involved in my state's student division, distribute more NFB literature whenever the opportunity arises, and enroll in an NFB-affiliated center to gain proper training.
My experience in Louisville was a fun-filled learning opportunity times two. Louisville will always be special to me because of that. As I lie in my bed wondering what is in store in HOT-lanta in 2004, I fall asleep with two conventions under my belt and memories of both echoing in my head. I can still hear the phrases: "Excuse me, I didn't mean to step on your dog. What state are you from?" "Get your Iowa scissors!" "Which way to the general session?" "We won't quit!" "Now, Mr. Gashel, he said that he would consider it." "Get your Jernigan raffle tickets! "How about a door prize, Diane?" "Katrilla Martin, Virginia, Virginia." "Get on the PAC Plan."
The 2004 National Federation of the
Blind Scholarship Program
This year's scholarship program will be the twenty-first since the organization determined to expand the number, variety, and value of the scholarships presented each year at our annual convention in July. Assisting the nation's most talented postsecondary students to fulfill their academic and professional dreams is one of the most effective ways for us to demonstrate our conviction that blind people deserve the chance to enter whatever field they demonstrate themselves equipped to succeed in.
Scholarships will be presented this year to thirty college, vocational-school, and graduate students. Again this year the NFB awards will range in value from $3,000 to $12,000. This top scholarship has been named the Kenneth Jernigan Memorial Scholarship and is presented by the American Action Fund for Blind Children and Adults. We will, of course, also bring the winners as our guests to the 2004 convention of the National Federation of the Blind to experience firsthand the excitement and stimulation of a gathering of the largest and most dynamic organization of blind people in the country today.
Again we plan to present at least three of the scholarships to students who won scholarship awards in a previous competition. The purpose of these special awards is to nurture in today's students an ongoing commitment to the philosophy and objectives of the Federation. The students so designated will be recognized and honored as the 2004 tenBroek Fellows. All current students who were scholarship winners in previous years should take particular note of this program and consider applying for the 2004 National Federation of the Blind scholarships.
Full-time employees interested in pursuing postsecondary degrees should take a close look at the scholarship form because one award may be given to a part-time student holding down a full-time job.
Every state affiliate and local chapter can help in spreading the word of this extraordinary opportunity for America's blind students. The scholarship application is now available for downloading from the NFB Web site <www.nfb.org>, and forms have been or soon will be mailed to financial aid offices in educational institutions around the country. Many of these will be filed away and forgotten by the time students come to ask about financial assistance. It is very helpful to have local representatives deliver or mail forms to the actual college administrator who works with blind students. Being identified with such a valuable national scholarship program gives the local chapter and state affiliate prestige and respect, and the local touch insures that more blind students will actually have an opportunity to apply for these scholarships.
Anyone can order scholarship forms from the Materials Center, National Federation of the Blind, 1800 Johnson Street, Baltimore, Maryland 21230-4998, or <nfbstore@nfb.org>. State presidents and members of the 2004 Scholarship Committee will also be sent scholarship forms. These may be copied as long as all sides of the form are reproduced. The 2004 scholarship form is now downloadable from our Web site, <www.nfb.org>. Please do what you can to spread the word about this program.
Planned giving takes place when a contributor decides to leave a substantial gift to charity. It means planning as you would for any substantial purchase--a house, college tuition, or a car. The most common forms of planned giving are wills and life insurance policies. There are also several planned giving options through which you can simultaneously give a substantial contribution to the National Federation of the Blind, obtain a tax deduction, and receive lifetime income now or in the future. For more information write or call the National Federation of the Blind, Special Gifts, 1800 Johnson Street, Baltimore, Maryland 21230-4998, (410) 659-9314, fax (410) 685-5653.
A German Voyager's Bold Vision for Tibet's Blind
by Jim Yardley
From the Editor: The following story appeared in the September 20, 2003, edition of the New York Times. Whenever I read anything about Sabriye Tenberken's work with the blind children of Tibet, I am reminded of the lyrics of the song, "High Hopes," all about an ant who succeeded in moving a rubber tree plant. No one thought it could be done because of the overwhelming size of the problem, but the ant was not discouraged, and neither was Ms. Tenberken. Her life and work are a reminder that remarkable things can be done by those who refuse to take no for an answer. Her attitudes and teaching techniques will seem familiar to those acquainted with the methods and philosophy of NFB training centers. Here is the story:
Upon arriving in Tibet, Sabriye Tenberken decided to tour the countryside, not from the comfort of a car, but atop the hard saddle of a horse. It was a chancy decision, not only because the rugged Tibetan landscape can be unforgiving and treacherous, but also because Ms. Tenberken is blind.
She thought the horse was perfect. She knew that blindness carried a terrible stigma in many parts of Tibet, and she had been told that many blind children were living in isolated, rural villages. She had started riding as a child in her native Germany, one of many lessons in self-reliance, and she wanted to instill a similar sense of independence in Tibetan blind children. So she saddled a horse and, with three other people, began riding.
She was less prepared for what she and her traveling companions discovered. "It was quite depressing," she recalled. "We met blind children who were four or five years old and looked like infants. They hadn't learned to walk because their parents hadn't taught them."
The memories are still fresh six years later, though now Ms. Tenberken is seated in a bright second-floor sitting room above the school she has founded for blind Tibetan children in the land she has adopted.
Her partner, both personally and professionally, Paul Kronenberg, is working on a computer in the next room, as voices of children drift through an open window from a courtyard below. The children are practicing a play written by one of them.
In a Himalayan region known as "the roof of the world," where high-altitude sun exposure contributes to unusually high rates of eye disease, Ms. Tenberken and Mr. Kronenberg, who is sighted, now run Braille Without Borders, a program for blind children in Tibet.
She created the first Tibetan Braille system, which she is now teaching to her students, and her memoir about Tibet, now available in the United States, was popular in Germany.
Nor is Ms. Tenberken, thirty-three, finished. In coming months she and Mr. Kronenberg plan to open a second Braille Without Borders program in northern India, a first step in their goal of expanding their work to other developing countries. Mr. Kronenberg, an engineer by training, is also trying to develop a lighter, less expensive Braille machine.
Tall, with straight, sandy brown hair, Ms. Tenberken still remembers the skepticism she faced when she presented her plans to local officials in Tibet. She had first tried to get a job with different international aid groups, but she says she was told that blind people were prohibited from doing field work.
So she decided to start her own organization. Everyone, she remembered, thought she was crazy. "They couldn't imagine I could come to Tibet," she recalled. "They said, `It's not possible. She's blind; who can take care of her; who can take her around?'"
The chaotic streets of the old Tibetan quarter near the Jokhang Monastery present a disconcerting mess for sighted people, yet Ms. Tenberken navigates them herself and expects her students to learn to do the same. Her own childhood was filled with such challenges.
Ms. Tenberken was raised in Bonn. Her father was a pianist, and her mother directed children's theater. Her brother is now an artist, prompting her to observe lightly that she came from an artistic family.
"I'm the only one who is a little bit practical," she said. She learned about independence from her mother, who as a student in Turkey during the 1960's dressed as a man on research trips because women were forbidden to travel. In Turkey her mother also chose the name "Sabriye," which means "patience" and "small hedgehog."
When Ms. Tenberken was only two, her parents learned that she would gradually lose her sight. They did not tell her about her condition, and by age thirteen she was blind. Her parents, though, had spent the intervening years filling her life with images. They took her to museums, traveled extensively, and filled her eyes with colors. "I have all my visual images in my head," she said.
She says she agrees with her parents' decision to keep secret her impending blindness, because knowing might have terrified her. But not knowing did make her condition baffling. She kept banging into things without knowing why.
She finally put a name to her problem when she met another young girl who was blind. "It was a relief because suddenly I had a word for something that wasn't functioning as well as others were functioning," she said.
Her parents encouraged her to discover her own boundaries as a blind person, a philosophy reinforced when she attended a leading German high school for the blind. She learned to ride horses, ski downhill and cross-country, and kayak in white water. "They showed us the teaching and methods and said, `Okay, you have to do something,'" she recalled. "The whole world was open to us if we knew the techniques and methods."
She has adopted a similar philosophy for teaching her twenty-nine Tibetan students, ages four to twenty-one. In August the group went white-water rafting, and they plan to climb a nearby Himalayan peak next year. The program emphasizes living skills like cooking, hygiene, and self-reliance, yet it also teaches workplace skills like computer use and Tibetan, Chinese, and English. Training is also offered in careers like massage therapy and music.
Ms. Tenberken's interest in Tibet took hold at Bonn University, where she decided to major in Tibetology. She was the only blind student in the program, and Tibetan had not been translated into Braille. So she did it herself. Her first trip to Tibet, in 1994, ended quickly. She came down with altitude sickness and had to fly home.
Undeterred, she returned for good in 1998, starting her school with one teacher and six students. They were quickly evicted from their first building for lack of money.
Financing remains a juggling act. The monthly budget for the entire program is $1,900. Proceeds from her memoir, My Path Leads to Tibet, helped buy the current building, while donations have come from people in Germany, the Netherlands, and Switzerland.
She has set up a Web site called <braillewithoutborders.org>.
Finishing her cup of coffee, Ms. Tenberken offers a tour of the school while the students practice their play. The playwright, Kyila, seventeen, who once lived in a small village in northern Tibet, could not read or write when she came to the school a few years ago. Now she is making plans to become a massage therapist, while her twin brothers, both blind, want to open a teahouse.
Soon four other students will leave the program to enter a regular Tibetan school, the first to make that transition. "The kids ask us every day, `When do we go?'" she said.
Her own future will remain busy, with planning for more programs in more countries. She and Mr. Kronenberg hope one day to open a training center, possibly in southern India, where they could train others in starting up their own programs for the blind. The main goal remains instilling self-confidence and self-esteem so that blind children will "not be embarrassed anymore."
A blind child, she notes, will never be able to drive a truck. "But they can read and write in the dark," she said. "And who can do that?"
[PHOTO/CAPTION: Tony Candela]
A Rehabilitationist's Notebook:
Oliver Sacks on Blindness
by Anthony R. Candela
From the Editor: Tony Candela sent the following thoughtful article to the Braille Monitor two weeks after the publication of a long and interesting article by Oliver Sacks in the July 28, 2003, New Yorker magazine. Dr. Sacks is a fascinating writer with a lively curiosity. He is certainly not an expert on blindness or the experience of blind people, and Tony Candela's concerns and criticisms of his article seem well founded. Even without reading the original essay, thoughtful people should find what he has to say of interest.
Mr. Candela has worked as a rehabilitation counselor and employment specialist in the blindness field for more than twenty-five years. He has worked for the Commission for the Blind and Visually Handicapped and Lighthouse International in New York and is currently a national program associate in employment with the American Foundation for the Blind. He has a master's degree in rehabilitation counseling from Columbia University. Blind since birth, Mr. Candela has participated in wrestling, scuba diving, and long‑distance running. He lives in Berkeley, California. This is what he says:
The July 28, 2003, issue of the New Yorker magazine featured an article by famed clinical neurologist Oliver Sacks, in which he continues his lifelong quest to understand brain, mind, and the total human experience by tackling the latest phenomenon to capture his interest: how people who lose their sight in adulthood see the world. I believe Sacks's attempt to explain something fundamental about human functioning from the experiences of only a few blind people is scientifically misguided and may have deepened certain stereotypes about blindness held by the general public.
Sacks became interested in how blind people who once possessed eyesight now perceive visual images. If they still conjure up these images in their heads, what accounts for this ability? What do we make of documented differences between blind people in their ability both to retain images from when they could see and to create new images from present-day experiences? In short, Sacks wonders what happens inside the brains and minds of blind people that enables and indeed inspires these images and what this can tell us about how the human brain works in general.
Skilled as he is in clinical neurology, Sacks in his attempt to make sense of disparate reports from blind people is hampered by his failure to include not only psychological and social factors but even some physiological elements necessary to fully understand the experience of the blind people he studied. With a faulty foundation, it is not surprising he had difficulty making sense of what he heard. More important, we must ask what ideas about blind people the sighted readership take away from the article.
I have been visually impaired since birth and blind since middle adulthood. As someone who also has worked with blind people his entire career, I understand that blindness cuts across all strata of the human condition-–including all manner of mental capability. As a professional rehabilitation counselor trained in the social sciences, I favor methods of inquiry about the human condition that incorporate both a close understanding of people's individual circumstances and a broad-based perspective on large groups of people with similar concerns.
As a medical scientist, Sacks misses some of these nuances because he approaches his inquiry into the human experience through case-by-case analysis. His goal is to uncover the physiological foundation of mental experience. The medical case study, a technique used by physicians for centuries, is a modality we social scientists have come both to cherish and to mistrust. It is easy to analyze a few people in detail and think you have uncovered all the secrets of people in the category in which you are interested. In the New Yorker article, for example, Sacks employs information from only five blind people in his exploration of human mental imagery.
Most of us have heard of Oliver W. Sacks. He is a clinical neurologist whose most famous books include The Man Who Mistook His Wife for a Hat and Other Clinical Tales, Awakenings, An Anthropologist on Mars: Seven Paradoxical Tales, and Seeing Voices: A Journey into the World of the Deaf. Sacks recounts his personal circumstances in two books: A Leg to Stand On (musings while recovering from a broken leg) and Uncle Tungsten: Memories of a Chemical Boyhood (a delightful look into how Sacks's uncle got him interested in chemistry and the scientific approach to knowledge). Here we learn that the young Oliver, growing up in England during the blitz of World War II, was fascinated with physical phenomena from an early age. The fact that his mother was a surgeon no doubt also contributed to his scientific curiosity.
Sacks's style is gripping and enlightening, even if not always scientifically rigorous. He uses the case-study method to delve deeply into the experiences of patients and people struggling to function amidst often peculiar and unfathomable handicaps. For example, Sacks explains with pathos (the human experience deserves no less) what it is like for people to awaken from a coma after being "asleep" for years; trying to climb out of bed with a leg amputated while feeling that it is still attached to one's body; grabbing one's spouse by the head because of mistaking her for a hat; hearing music all the time, even when none is playing; and other similarly unusual experiences.
Sacks has actually come close to writing a book on functional vision. His 1997 book, The Island of the Colorblind, tells the story of how Sacks traveled to a few islands in sun-drenched and glary Micronesia, where there live pockets of achromotopes, people who, through geographic isolation and genetic inbreeding, are unable to perceive color. Sacks comes to understand that the problems of the achromotopes extend beyond their color-blindness. Extreme photophobia and poor visual acuity complicate their lives. To ease their pain (literally), Sacks and his colleagues provide the inhabitants with wrap-around sunglasses and other corrective optics.
Sacks's scientific and medical roots compel him to look at the world from a positivist perspective, believing that we shouldn't waste our time trying to figure out things that cannot be truly known (that is, reduced to basic rules). This means that Sacks's sincerity when he tells the world that not everything about the human condition has an explanation is tainted by his own deep-seated desire to provide one. When he cannot, he generally moves on to another line of inquiry.
What frightens me is Sacks's fixation on explaining human existential experience through brain function, while at the same time assuring us that he would never cheapen the human experience by reducing it solely to that level. I contend that, as convincing as these words may be, Sacks will not rest easy until he finds universal truths in the neuronal strata of the brain about how we function. Now that blind people have fallen into Sacks's sphere of interest, we may have a public relations problem.
In the New Yorker article entitled "A Neurologist's Notebook, The Mind's Eye: What Blind Men See," Sacks focuses on a thorough and soul-baring exploration of how one blind man's ability to form visual images in his mind vastly differs from that of another whose capacity for mental imagery is extraordinary. John Hull, a British professor of religious education who slowly lost his eyesight until finally becoming totally blind at age forty-eight, reported that he retained no ability to picture things in his mind. In contrast, Zoltan Torey, an Australian psychologist who has not only been blind since age twenty-one but an expert on the brain-mind problem, developed his ability to visualize the world to such a degree that he can picture complicated internal machine designs and indeed the convoluted, multilayered structure of the human brain itself.
Sacks explains recent research into the plasticity of human brain functioning. He informs us that studies of the brains of adventitiously deaf or blind people (people who lost their hearing or vision after developing their auditory or visual brain centers) show that the brain has the amazing capacity to reorganize itself. Functions can be re-allocated so that visual processing activity shows up in the auditory cortex of deaf people, and auditory processing activity can be seen taking place in the visual cortex of blind people. Moreover, documented differences exist among people in their preferred way to acquire information about objects and concepts. For example, some blind people are more innately visual but have developed their auditory and other sensory skills to a greater degree than they might have had their vision not deteriorated. Other people are more auditory and, because their vision is good (and as we know, sometimes not so good), never fully develop their auditory, tactual, and other perceptual skills.
Sacks explains that our ability to visualize comes from the brain's capacity to intermix its own functional abilities: "There is increasing evidence from neuroscience for the extraordinarily rich interconnectedness and interactions of the sensory areas of the brain. The result is increasing difficulty in saying that anything is purely visual or purely auditory or purely anything."
He concludes: "The world of the blind, of the blinded, it seems, can be especially rich in such in-between states--the intersensory, the metamodal--states for which we have no common language."
In the New Yorker article Sacks gives only passing attention to emotional and personality-related elements of human behavior. Take a common personality trait: extraversion. Sacks seems unaware that acquiring a working picture of one's environment takes a certain degree of social energy and outward orientation to ask numerous questions of sighted companions (as illustrated in this article by Arlene Gordon, a retired blind social worker). Moreover, personal reaction to one's physiological state contributes as much to how the brain reconstitutes itself as anything else. For example, if one were to become depressed over the loss of one's sight, he or she might withdraw, close off interest in the aggressive pursuit of the visual images that once came easily, and slowly lose or repress memory of those images.
Take this passage from the Sacks article about Jacques Lusseyran (a blind French resistance fighter in World War II):
A very short time after I went blind I forgot the faces of my mother and father and the faces of most of the people I loved. I stopped caring whether people were dark or fair, with blue eyes or green. I felt that sighted people spent too much time observing these empty things. . . . I no longer even thought about them. People no longer seemed to possess them. Sometimes in my mind men and women appeared without heads or fingers.
Like Hull, Lusseyran simply stopped caring, perhaps withdrawing to an inner sensory world, and because his personality drove him to do so, he developed other ways of perceiving the world. In a passage from the Sacks article I will not include here, Lusseyran relates how he flabbergasted a friend as they walked together by telling him exactly what the landscape should look like. Lusseyran attributes this ability to the remaking of his inner world. His (and Sacks's) failure to include visual memory as a possible explanation illustrates the need for more thorough clinical interviewing before scientific statements can be made about the inner experiences of blind people.
Sacks continually appears awed when he encounters a mental phenomenon that cannot be explained by the sum of all the functional parts of the brain. It is indeed alluring to conceptualize the world in this way, and I think many people in Western society think so too. We tend to believe that everything should be explainable by some sort of unifying theory. That is what makes Sacks so riveting and, for us, the thing that provides a point of concern.
Skillful writers who publish in the popular media have the potential to convey both positive and negative images of blind people. In my opinion the New Yorker article did both. First, it drew the public's attention to blind people in a way that makes it clear that they are not all identical. On the downside it is hard to believe that the article did not also inject into the public mind a new level of occult mystery about what it's like to be blind. For example, most disturbing for our public image are discussions by Sacks of reports from blind people about conjured up, quasi-hallucinogenic visual images. It seems to me that dramatic reports about fantastic images reported by some blind people (perhaps with an artistic flair) do a disservice to the majority of us, who remain grounded in everyday reality.
Sacks begins this part of his discussion by saying that, when blind people can't see an actual visual image, they often conjure up their own image of what they think something might look like. True enough. However, usually they don't go overboard. Passages like the following from the article give the general public a sensationalized image of the inner mental life of blind people:
What happens when the visual cortex is no longer limited, or constrained, by any visual input? The simple answer is that, isolated from the outside, the visual cortex becomes hypersensitive to internal stimuli of all sorts: its own autonomous activity; signals from other brain areas--auditory, tactile, and verbal areas; and the thoughts and emotions of the blinded individual. Sometimes, as sight deteriorates, hallucinations occur--of geometrical patterns, or occasionally of silent, moving figures or scenes that appear and disappear spontaneously, without any relation to the contents of consciousness or intention or context.
Sacks gives the false impression that uncontrolled brain activity is the norm within the heads of blind people. He continues:
Something perhaps akin to this is described by Hull as occurring almost convulsively as he was losing the last of his sight. "About a year after I was registered blind--I began to have such strong images of what people's faces looked like that they were almost like hallucinations."
Sacks neglects to consider the role of literary license in his interpretation of Hull's experiences. He also fails to consider the role of native intelligence (memory, attention, mathematical ability, verbal fluency, etc.) in the mode of adaptation blind people choose to use. For example, a blind person who is extremely bright, has good analytical skills, and a steel-trap memory will retain and perhaps conjure up visual images differently from one who doesn't rely upon memory nearly as much and whose analytical style is different. Some people, for example, can take a few facts and build an accurate and intuitive image of the whole; others need a great deal more concrete information with which to deduce the picture in front of them. Thus, even comparing only two hypothetical people, it is easy to see that so many factors go into how someone perceives the world-–with or without sight-–that ultimately a Sacksian reductionistic explanation is impossible.
In the end Sacks (correctly) leaves us in the lurch. He announces that the phenomenon of sensory perception is too blurred for us to get a clean fix on it and that we cannot know for certain where the realms of sensation, perception, and imagination begin and end. As is his wont, Sacks defaults to the wonders of the mind, claiming that there is a hierarchy to how we process reality:
At this level one can no longer say of one's mental landscapes what is visual, what is auditory, what is image, what is language, what is intellectual, what is emotional--they are all fused together and imbued with our own individual perspectives and values.
Regarding Hull and Torrey, he concludes:
Even though the paths they have followed might seem irreconcilable, both men have "used" blindness (if one can employ such a term for processes which are deeply mysterious, and far below, or above, the level of consciousness and voluntary control) to release their own creative capacities and emotional selves, and both have achieved a rich and full realization of their own individual worlds.
Conclusions
It is probably a step in the right direction that a luminary as bright as Oliver Sacks decided to devote his intellectual and clinical powers to the blind. In his later years he seems to have defined himself as a champion of people with disabilities and a compassionate voice for those who cannot adequately describe their existences to the general public. Although to some extent Sacks's article has helped the public understand that blind people are not all the same, in certain important ways it may have increased the mystery in which we are viewed by those who do not know us well.
Empirical scientists and philosophers have used the blindness model as a vehicle to understand more about knowledge and human perception at least since Diderot's famous letter of 1749 ("Letter on the Blind for the Benefit of Those Who See"). In this letter Diderot popularized a long-standing philosophical question: if a blind person who has never been able to see learns the shape of a cube by touch and then has his sight restored, will he be able to identify the cube by sight?
Notwithstanding the chance that the answer to this question might shed light on human brain development and plasticity, the blind community needs to decide how it would like philosophers and scientists to employ the blindness model in their search for facts about human functioning. Blind people should insist that all physiological elements be part of the calculation. Experiential elements can also play a critical role. To illustrate these points: we all know people who will answer yes when asked if they are totally blind, or if they have always been that way. More careful questioning often reveals the presence of some light perception. Uncovering of primal memories often reveals a visual history temporarily forgotten by the blind person and conveniently ignored by those interested in finding model blind people for their studies of total sightlessness.
Sacks's literary prowess is potentially problematic. He is regarded as an authority, and, even when he himself tries to convey the idea that he doesn't always know, intelligent people take his word as gospel. The following passage from the preface of Andrew Potok's 2002 book, A Matter of Dignity: Changing the Lives of the Disabled shows how